Today is World Down Syndrome day. Today is also exactly five weeks since our son, Andrew Solomon Domorev, was born. Life took a detour that day when our beautiful little boy surprised us with one extra chromosome. Evidence of a related serious medical issue saw a sudden and dramatic transfer from regional Bundaberg Base hospital by the Royal Flying Doctor Service to the Mater Mother's hospital. Here Andrew would spend at best weeks, if not months, in NICU recovering from life-saving surgery to take place at the Lady Cilento Children's hopsital just two days after he was born.